New Distractions!

 It was my birthday back in August and it's always a bittersweet time of year for me as usually the Rheumatoid part of my pain is at it's highest point during the summer and although I really do enjoy the company of friends and family I struggle to keep up with it all.

Since starting on Humira I have had a slight improvement in that sort of pain and my bloods have come back as OK but the joints that are already damaged really, really hurt and that's all the time - 24/7...Tramadol and Celebrex help a bit but sometimes the pain switch is turned up to *11* and drugs don't touch that pain, I try to keep busy and distract myself as much as I can. I am (of course) limited by the 15 minute thing*see end of post*

I LOVE chickens and finally family and friends gave in and agreed, indeed INSISTED that they get me some new chickens for my birthday!
I have two VERY old ladies in my flock so we get very few eggs at the moment and as those two ladies have lived twice as long as they are usually expected to I'm probably going to lose them over the winter.

The two hens at the top of this post are Skyline Hybrids and there's a 70% chance of getting blue eggs from them so I was hopeful of getting maybe one that laid blue eggs but *tada* yesterday there were two lovely pale blue eggs in the nest box!

Lovely surprise from Bramble (left) and Rose (right) who are fitting in brilliantly!

Chickens are funny old things and as disease spreads quickly through a flock I persuade the Fella that we HAD to get the new girls from a man over at Little Bealings who had sold me my original old girls and it was well worth the journey as in addition to Bramble and Rose I also chose two younger hens, a Cuckoo Maran and a Wheaten Maran, yet to be named and currently occupying the folk's garden while I sort out their tempory run and house that they will live in until they're a bit bigger...

 It's thanks to my lovely friend Jenny Tidman that all these extra hens are joining us as she and Mr T have helped us out with some extra housing. 

All this was organised before, during and after the many felting workshops that Jenny teaches for me at HH HQ. Until now Rachel did the Wet Felting Workshops and Jenny did the Needle Felting ones but as Rachel is no longer teaching the first of Jenny's Wet Felted Bowl workshops took place last Friday and I made a bowl - I didn't think I'd manage it because my hands have been so bad lately but with after being reassured that I could stop and restart it whenever I wanted I had a go!

With a very gentle approach to the technique I didn't find it as tiring as I'd feared and I think everyone was pleased with what they produced - I will include the finished pics on the shop blog www.halfpennyhome.blogspot.com as they were all still drying when they left with the textile artists!

 It's always interesting to see how many interests 'overlap' and how many things creative people have in common with each other! We tried out a couple of new recipes at the latest Soap Making session and one of them is a gardening soap - a soap specially made for gardeners!

The recipe was adapted from a book I bought at Victoria Bells's bookshop in Framlingham and also gave me the basis of the recipe for the soap below - Calendula and Chamomile which includes Marigold petals from the allotment.

Beautiful!

I've become more and more interested in including plants from the allotment and hedgerows in some of the crafts I enjoy teaching, there is so much to learn about them! We already make our natural dyes from locally grown plants and future workshops will include a Lavender, Lemon and Nettle balm which is supposed to ease inflamed joints...

Nic x

*as RA patients we are constantly told to 'keep moving' 'exercise' 'rest' 'don't stay sitting for too long' 'don't stand for too long' 'rest' 'don't do too much' 'try to do as much as you can' 'rest that knee/foot/ankle/hand' 'don't stop using that knee/foot/ankle/hand' *sigh* I call it the 15 minute thing because if I do anything for longer than that without changing position I have intense pain and stiffness...

Feed me!

Chocolate and peanut butter crispy cakes!

One jar of crunch peanut butter, two big bars of cooking chocolate, dark and high in cocoa solids! Melted together in the microwave (choc first and then add PB) then give it a good stir, sniff (very important!) and then add enough cornflakes or rice crispies to use up all the chocolate peanut yumminess before spreading it all out on a tin or baking tray lined with a bit of greaseproof. Leave in fridge while you go and do something else and cut into squares just before you need it - the bits that drop off as you tidy are for you to test and it is kinda the law that you do this and at the same time give yourself a pat on the back! Mrs Tudor and I thought that they would be jolly nice if they also had some sultanas or flaked almonds in...or some glace cherries.....*sigh* sadly the Monday ladies are a little choosy and some don't like sultanas or orange or apple or...you get the picture? I like to try and keep everyone happy!

 This post has been inspired by a great tweeter fella who loves a good cake and always makes me smile when things are being a bit glum or tricky...he knows who he is! He liked the look of my crispy cakes which went down a storm with the crafty ladies last night...I missed another evening session of my Monday group due to being knackered and feeling a little under the weather - I have my second assessment for anti-tnf this Thursday and it's making me a little stressed. Over the last few years I have seen a pattern forming and I always get slightly 'better' around this time of year - to narrowly fail another assessment would be very hard to bear....but hey ho, there is always cake!

I've had to adapt almost every aspect of my relationship with food since becoming ill, at first I did try to isolate which villainous foodstuff was responsible in making me become so ill. Then after a while I thought 'sod it' and didn't really bother about anything, I just wanted to be able to move around and not be in pain - food became fuel and was no longer pleasurable.

I'm back round to enjoying my relationship with food again, it's different and there's always a few glitches along the way such as when I take Tramadol (takes away my appetite completely - not a good thing! I may look hefty but it isn't always food that's responsible...) but we are rubbing along nicely right now...I've developed a few different techniques which will have purists fainting all over the place but it gets me by and I have very few complaints!

These are my heavy old scales, they belong in a big farmhouse kitchen and not in a tiny modern (but perfectly formed) council house in deepest, darkest Suffolk. 

I use the butter to weigh out the self-raising flour and sugar - equal amounts of each and then pop the butter into one of my lovely old vintage mixing bowls and place it in the oven whilst it's warming up. I know that I should be creaming the sugar and butter together until it's light and whippy but if I do that I will need a lie-down for the rest of the day. It's the same with preparing vegetables, chopping up a butternut squash can finish me off for a week! As soon as there is some softening occurring I remove the bowl carefully and sit down with it at the table and using a wooden spoon start to mix everything together...I could use the Kenwood mixer but what with the pills resting on it and having to change the beater...I prefer this way. Once I've added eggs - five if they are from Zsa zsa or Button and four if they are from Hylda or Betty - I plonk it into a big silicon and glass cake tin I got from Lidl for four quid and cover the surface with chopped up fruit. Pear and raspberry work well but so do pears on their own and if you are lucky enough to live near a Bullace tree then do some foraging and get them on that cake! After a sprinkle of sugar it goes into the oven and is ready when an inserted skewer comes out clean...ta da!

It's not all about cake though and the Fella and I have had this (above) every Sunday bar one ever since seeing this on Nigella's programme - he reckons he'll never get bored of it! Parmesan dusted eggs are cooked in tomatoes that have been mushed up in a pan with garlic and chilli - we use a squeezy tube of Harissa paste from the Turkish bit in Asda instead of chopping chillies, with my track record for clumsiness it's far to risky to allow me to handle REAL chillies...

So between my wonderful ma cooking brilliant roast dinners for me and eating with the Fella I have managed to find a way to love food again. I can no longer lift my pots and I can't cook every meal everyday, I don't have the energy and my hands hurt far too much but we get there...slowly! Tonight we will have sesame prawn toasts with our Thai curry, in the old days I could rustle them up in no time but these days I need three days notice and recovery time...they are so worth it though! The only ones we have had that are better are at the China Chef in the Station Yard at Needham Market.

There's your first food blog from me then Noel...I've held back some hot cake pics for another time! Nic x

PS. Apologies for poor quality photos, I'm borrowing the Fella's laptop and only have BlackBerry photos of food to hand right now!

Harvest

It's autumn and that marks three years since I first visited the rheumatology department at Ipswich Hospital. If they ever move the pictures that adorn the corridors around I'd be wandering around in there forever! I have absolutely no sense of direction...up until May this year I have been every six months since that first appointment. Now I seem to be up there every week, recognizing the number of the hospital on my phone despite not entering in my contacts list.

Reading through my notes I see that I was presenting classic symptoms of Rheumatoid Arthritis which through most of the last three years has been raging through my body causing pain and inflammation - my feet were described as 'little trotters' once as they were so swollen...

I know it's hard for people to understand that every part of me hurts most of the time, I wear splints on my hands when my thumbs need support not because they hurt more than my feet, knees, back or hips...it is quite upsetting when people assume it's only the part of me I'm supporting at that moment whether it's with splints or a stick. This happened yesterday, last Friday, last Wednesday...a very good friend assumed that just because RA is now thought to be on the scene it's somehow, all of a sudden become so very much worse than when it was thought to be PsA. The usual suggestions of a change of diet and Chinese herbal supplements then followed....it's hard at the moment not to cry out and show people just what it's like to be permanently tired and in pain.

I know that they are merely trying to help, to try and find a quick fix, to get me back to how I was before this happened...

The programme on Channel 4 called 'Food Hospital' featured RA in it's list of conditions that can be cured with food - I'm not denying that there are some conditions that are affected by food but trust me if I could run again if I never touched another crumb of bread then do you not think that I would find the will power to resist?  Programmes like this, articles in the newspaper all citing lower ESR levels as evidence of a particular diet working give false hope to all the well meaning, thoughtful people around us.

My ESR levels have never been high, have always been unremarkable and yet there is no denying that there is always inflammation there. Celebrex has become my favourite drug - hope that they keep me on it, the swollen feet have gone down, my fingers no longer resemble sausages. The pain I have now is not from inflammation as the damage has been done, the bones are crunching against each other and I remove myself from that with Tramadol.

It's breakfast time, I'm here at the kitchen table, waiting for the pills to work and trying not to think about food, the Tramadol has taken away my appetite and as anyone who knows me in real life or via Twitter I live to eat, love to cook and feed people. The Fella and I are taking it in turns to cook nice healthy meals for each other, my parents cook for us once a week and we're struggling through...

Nic x

PS. I get the disc with Friday's MRI scan on it today! The really helpful lady in Diagnostic Imaging has posted it out to me and the nice lady at PALs is trying to find out why the Radiographer's notes were removed from my X-ray images...two painful steps forward and then one back!