Tuesday 10 September 2013

Pain management and the art of allotment maintenance...

 I adore food, as I've said before - I love to eat, cook, grow and serve it up to people! Browsing through seed packets and planning what to sow next is one of my favourite things to do and now that we're doing the 5:2 fasting way of eating it's got even more interesting! 
We've been doing the menu planning thing for a while and it has helped reduce waste and save us money, it also shares out the cooking, I can't cook every day - RA makes you constantly choose between cooking a meal, having a bath, washing hair, cleaning a room, shopping, going out with friends...etc. factor in work, blood tests, filling prescriptions, hospital consultations and drug deliveries and you can see that it can be a tiring old business and there's also work!
The 5:2 fits into this well as we do Monday and Wednesday as a fast day, last night we had salmon and a kind of savoury rice using cauliflower which was pretty awesome. He does the food on Wednesdays and Fridays, I do Mondays, Tuesdays (when my folks visit) and Thursdays, ma cooks for us on Sundays! Fella is also in charge of Saturdays...
 The Fella loves a pie in any shape or form and I love making them although he has begged me not to put quite so many courgettes in things this year! 

I didn't grow courgettes last year, or the year before, or the year before...I found a plant marker dated June 2009 at the allotment a while ago and it was for the Welsh (or everlasting) Onions I grew from seed that year, one of the last things I remember doing before I was ill. I'd planted up a fair bit of the plot with fruiting bushes and asparagus when I was fitter and they could look after themselves!

As the likelihood of my actually having RA came to the fore everyone said I should give up my allotment, too much work for me to keep on top of as well as trying to get control of a painful and difficult to treat condition. 

I didn't listen and over the years I HAD to go and feed my chickens, sometimes taking 4 hours or more from waking to leaving the house, the allotment is about a mile away and I used to hope I wouldn't see anyone as their enquiry as to how I was feeling would make not crying because of the pain impossible.

There have also been some funny moments like the time I took codeine and forgot to close the door to the run! Luckily I have some very forgiving, long suffering and nimble allotment neighbours who were excellent chicken catchers!
A combination of generous growers, established fruit bushes and friendly chickens kept my spirits up, and my interest in growing er...going! 
Every year I would order seeds optimistically thinking that this year I would be more in control of the pain and able to actually plant things...the pile of seed packets got bigger and expiry dates passed.
 Last year some good friends of us both took over part of the allotment, about a third of it. This made a huge difference and as they were very enthusiastic due to the fact that they had no garden at home they did overdo it a bit on the courgette and spinach front, hence the courgette ban!
 They farmed the area for around a year before they found a house nearby that has a huge garden! 

I've attempted to keep on top of the part they cleared by changing the way I do things - I don't dig, can't dig and my hands can't grip to weed so I've been covering things with mulch, tarpaulin and by growing squash plants around and between the brasiccas.

Little and often also works for me although recently I have managed a couple of hours down there, a lot of it sitting and resting.

Timing my medication so I am as pain *free as I am ever likely to be and where possible bringing something back each time so I have a reward.

This appears to be working for me thus far, I'm also indebted to one of my knitters who gave me the tip for blackcurrant picking - prune the fruit laden branches and take them home where you can sit comfortably picking away instead of hunching over the bushes!

Genius!
 When I think back to when we were producing Country Crafts I'm not sure how I managed to do it given that I was going through a pretty big flare at the time and although I hurt now from the damage in my joints a flare is how I imagine it feels to be hit by a car or bus! I've had horse riding accidents, been in quite a serious side-on car crash, had a burst appendix and given birth...but none of these come anywhere near it. All I can think is that distraction has gone an awful long way to help me get this far.
 Not plums, potatoes! Blue ones and they stay blue when you cook them...these were the Fella's idea, I had all but given up on the idea of growing anymore spuds but between us we just about managed it. He's become more interested in growing food since we saw tiny cucamelons on television one Sunday morning, I'll do a blogpost all about those gorgeous little babies soon, I promise!
 I'm still sorting out the kitchen since the floor was replaced in the summer, it's a work in progress but as the old one worked well for me and I spend almost all my time in the kitchen - I can't sit on a sofa, too low and I can't get up again without help as my hips and knees lock up, even help hurts as people hold my hands to help me and I feel awful asking them not too...so I stick with the comfy chair with arms and everything I need within reach!
 
 I've been dealing with some major pains in my feet, hips and hands since Saturday so thought I would go over some more positive stuff we've achieved recently as a big distraction!
Thanks for bearing with me, Nx





Thursday 5 September 2013

Spare time and the happiness scale...

 My little brother was 40 this year and had a massive party to celebrate, it was organised by my clever sister-in-law who runs an events company.
 He had a band playing 'The Kings of Leon Smith' ROCK and one member Luke is the plumber who sorted HH HQ's horrendous plumbing back in 2009 when we opened!
It was a great night, a great weekend really as my aunt and her partner came to stay and as she is also a knitter, artist and fanatical Bowie fan we had a lot to catch up on.
I did get a little sad a times as it would have been great to dance, I did risk a jig holding onto my sister-in-law incase my knees suddenly gave way and I joined my nephew behind the sweet table where we had a secret bop...but for the most part it was very much a sit down affair for the Fella and I.
 We did notice that there are rather a lot of beer bottles in the picture above and there was also some cracking food, mini versions of fish and chips. horseradish and mushroom stuffed yorkshire puddings and all of us adored the mini cottage pies!

 As the paragraph above illustrates we love food, growing it, picking it, cooking it as well as eating it and as both of us have become increasingly unable to be as active as we both once were (I walked, cycled and ran everywhere - did yoga etc. and the Fella was a footballer...) the love of food has taken it's toll!
 It's always healthy stuff, mostly organic a lot home grown like the amazing garlic I grew this year! But whichever way you marinade your salmon the age old problem of energy in versus energy out will always be there.
 We have regular weigh-ins at the hospital check-ups we have at least every six months, mine are currently every three...and the effects various drugs we're taking are having on our bodies is monitored closely and reminders about weight are uttered.
My new consultant is pretty wonderful, nags me about blood tests and listens to me.
My last appointment with him was a good one, this time last year RA/PsA were having an intolerable effect on my life. Each day was an endurance test from waking to bedtime, the happiness scale (a device used to measure the effect arthritis is having on one's life was set to one up from the bottom for me. 
It was noted by my consultant that I was coping with being ill much better now, due in part to better pain relief available to me and the Humira working a bit. As I type this I am literally limping towards Saturday's jab which I hope will give some relief for 4 or 5 days or so - 4/14 better days are definitely an improvement from 0/365!
I measured my illness on my own personal 'happiness scale' I'm growing stuff again, picking, harvesting and actually managing to farm my allotment! I've changed the way I do things, I can't dig or lift anything, can't kneel down so I adopt a strange 'John Wayne' style stance and hope to goodness I don't fall face forward as I inspect my brasiccas for caterpillars...a morning on the allotment is the best therapy ever! Last year as in the previous two I would be worn out after ten minutes...

So, the pain is still there but I've got better at handling it and now have the tools with which to do so! Just the weight issue now, the Fella's hips have been really bad and mine have developed bone spurs from prolonged inflammation and when they *lock* it causes a pain which actually takes my breath away!
Just one problem and it's a BIG one...
 ...I hate diets, the word, the industry surrounding it and the idea that deprivation is the only way. The only scales I have at home are the ones I weigh my fruit haul in!
So after reading some sciencey stuff about the effects of following the 5:2 diet may have on inflammation in the body I persuaded the Fella that we could give it a try!
Two days of very low calorie intake and 5 days of eating 'normally' = fewer inflamed joints? Sounds like a great deal to me!
 So far it's been a month and we like it, he jokes that I failed to tell him that it's probably going to be a life-long way of eating...but despite having to reduce his breakfast by one slice of toast he seems to be enjoying it, if 'enjoy' is the right word!
A plate of vegetables never tasted so good and we're both sparkling water addicts now - no marked effects on the joints yet but we'll be keeping notes and a watchful eye on those blood test results!
Just a beautiful picture of some yarn I dyed with turmeric, happiness in fibre form!
I'm now *blogged out* having posted here and on www.halfpennyhome.blogspot.com with the latest workshop list...time for some allotment therapy and some chicken hugging, best medicine ever...:)
x